Jornadas RRI Tools Madrid: Cómo implementar la Investigación e Innovación Responsables? Rosina Malagrida, Unit of Public Engagement on Health Research
UDR-Bio: Unit of Public Engagement on Health Research Science Communication Educational programmes Public Engagement Responsible Research & Innovation (RRI) Community Advisory Board Community Based Participatory Research
Responsible Research & Innovation INNOVATIVE TOOLS Vetenskap & Allmänhet AHHAA Science Centre Foundation TRANSFORMATIVE TRAINNING Science Gallery University College London Science Animation King Baudeuin Foundation IrsiCaixa Experimentarium Athena Institute Bonn Science Shop Zentrum for Social Innovation Fendazione Cariplo Techmania Science Centre MOBILIS Polish Science Foundation Centre fot the Premotien of Science RUSE Chamber of Commerce and Industry WIDE DISSEMINATION Ciencia Viva Ellinogermaniki Agegi www.rri-tools.eu Open & Inclusive for a R&I more aligned with values and expectatives of citizens
COORDINATOR DEPUTY COORDINATOR HUBS COORDINATOR WP1 LEADER WP2 LEADER WP4 LEADER WP5 LEADER WP6 LEADER NETWORKS www.rri-tools.eu Budget: 6,9 Milion. Funded by the EC under the 7 th FM Program
INDEX 1. Why? 2. How? 3. When? Participation during all phases of the process 4. Inspiring Practices 5. Conclusions
Big societal challenges climate change Inclusive and secure societies clean energy 6/8/2016 healthy ageing Global poverty
What innovation do we want? And what s my opinion? How will I use it? What do I need? Research? Which Research?
Some voices are silent The Guardian. Special Report. Aids.
R&I and decision making on R&I within experts Ex. Patients being objects of studies and beneficiaries of research results
Some innovations have unpredicted consequencies and are controversial Robocare GMOs intensive farming Big data Drones
Society wants to participate What is the level of involvement citizens should have when it comes to decisions made about science and technology? Answer: Public dialogue is required (Req: 55% - Not Req: 37%) 77% of Europeans believe that science and technology have a positive impact in society 62% agree that science makes our way of life change too fast 55% think that public dialogue is required when it comes to decisions made about science and technology
Relationship between science and society SCIENCE AND INNOVATION SYSTEM
Science & society Outreach and info: focusing on understanding SCIENCE AND INNOVATION SYSTEM
Science in society Outreach and info: focusing on dialogue SCIENCE AND INNOVATION SYSTEM
DEFICIT MODEL
NEED FOR A TRANSFORMATIVE CHANGE OF THE R&I SYSTEM? SCIENCE AND INNOVATION SYSTEM
We need ambition at a policy level to support the best science for the world and not just the best science in the world Morten Østergaard Science in Dialogue Conference. Opening session. Denmark
INDEX 1. Why? 2. How? 3. When? Participation during all phases of the process 4. Inspiring Practices 5. Conclusions
Science for & with society NEED FOR A TRANSFORMATIVE CHANGE OF THE R&I SYSTEM SCIENCE AND INNOVATION SYSTEM
NEED FOR A TRANSFORMATIVE CHANGE OF THE R&I SYSTEM SCIENCE AND INNOVATION SYSTEM INTO THE PROCESS OF R&D&I SHARED RESPONSABILITY Science for & with society Influencing processes, decisions and actvities
FROM PUBLIC ENGAGEMENT TO PUBLICLY ENGAGED R&I J. Stilgoe, UCL
RRI: A dynamic and iterative process How to improve R&I Policies & Programme Project definition Project execution Implementation Interested stakeholders
RRI: A dynamic and iterative process How to improve R&I Policies & Programme Project definition Project execution Implementation Diversity & Inclusion Openness & transparen cy Anticipation & reflection Responsive ness & adaptative change
Inclusive deliberation methods SCIENCE AND INNOVATION SYSTEM
Diversity & Inclusion PROCESS REQUIREMENTS Openness & transparen cy Anticipation & reflection Responsive ness & adaptative change
How to RRI? Diversity & Inclusion PROCESS REQUIREMENTS OUTCOMES / IMPACTS Openness & transparen cy Anticipation & reflection Responsive ness & adaptative change Responsible institutions Ethically acceptable, socially desirable & sustainable Solutions to the grand challenges
Definition of RRI "Responsible Research and Innovation is a transparent, interactive process by which societal actors and innovators become mutually responsive to each other with a view to the (ethical) acceptability, sustainability, and societal desirability of the innovation process and its marketable products (in order to allow a proper embedding of scientific and technological advances in our society) Von Schomberg definition, 2011
Definition of RRI
Engaging a variety of stakeholder groups Institutional diversity Diversity and Inclusion Variety of means of stakeholder engagement Attention for appropriate R&I models Engagement of publics
Wide range Is there a wide variety of stakeholders involved, such that there is a diversity of values and a diversity of types of knowledge/expertise? Engaging a variety of stakeholder groups Sufficient amount Relevant voices Demogra phic diversity Are sufficiently many perspectives and participants included, such that eventual outcomes are robust (ScienceWise, 2013)? Is there diversity in the stakeholders engaged such that all relevant voices are heard silent as well as loud? Is there diversity within the stakeholder groups involved in terms of gender, ethnicity, class, age and other demographics?
Honest and clear (re-) presentation Openness to critical scrutiny from all stakeholders Openness and Transparency Open and clear communication about the deliberation and decisionmaking Appropriate means and content of communication and education per actor Open and clear communication about results
Analysis of background, situation and context Addressing roles in RI trajectories Anticipation & Reflection Envisioning of plausible futures Facilitate deliberation on values, needs, interests, choices and problem definitions Variety of impacts
Application of results Changing responsibilities Structure for seeking and incorporating feedback Responsive ness & Adaptive Change Flexible attitudes to revise views and actions Flexible process management Development and implementation of evaluation strategies
RRI Policy agendas in Horizon 2020 In selection committees, Research in Integrity, Ethics Human Resources Education as part of policies, in Research research training, ethics of content. scientific policy advice, Role of Ethics Committees... Green and golden gates, new pilot programme of the EC for data management. Science Education Engagement Gender Equality Ethics Open Access normative
Political impulse A cross cutting issue in Horizon 2020 RRI Rome Declaration endorsed by the Council of Competitiveness http://ec.europa.eu/research/swafs/pdf/rome_declaration_rri_final_21 _November.pdf Endorsed by private research foundations. http://www.efc.be/news_events/pages/news_efc-research-forum- Statement-on-Responsible-Research-and-Innovation.aspx Endorsed by research councils as the EPSRC and the NWO
INDEX 1. Why? 2. How? 3. When? Participation during all phases of the process 4. Inspiring Practices 5. Conclusions
The RRI Toolkit Types of resources available Library Projects Inspiring Practices Tools Documents, videos, presentations, blogs to get informed on RRI and key issues Get to know other projects already addressing RRI values Good practices in RRI. Want to follow their lead? Access to different instruments to implement RRI and its policy agendas 230 35 31 55 + Self Reflection Tool
Participation during all phases of the R&I process How to improve R&I Policies & Programme Project definition Project execution Implementation 1 2 3 4
Participation during all phases of the R&I process How to improve R&I Policies & Programme Project definition Project execution Implementation 1 Responsible Research and Innovation Toolkit (2014-2016) EC funded project Coordination: la Caixa Foundation IrsiCaixa: Deputy coordinator & Coordination of Spanish HUB
Participation during all phases of the R&I process How to improve R&I Policies & Programme Project definition Project execution Implementation 1 Analysis Phase: Consultation workshops 411 Participants 27 Workshops covering 30 countries Balanced composition: 52 % male, 48 % female
Participation during all phases of the R&I process How to improve R&I The chance to bring science and society closer and avoid future controversies 1 Policies & Programme Project definition Democratic benefits from more engaged citizens Project execution Implementation Improving the culture of science and scientific careers by expanding the role of scientists in society Creating better innovations, new markets and increased competitiveness and creativity through wider input, problem focus and new networks To raise questions that have never been addressed
Participation during all phases of the R&I process How to improve R&I Policies & Programme Project definition Project execution Implementation RRI is the end of true science!! 1 Science needs to become Responsible? So scientists are irresponsible now?! RRI is about much more th only research! It is too demanding for researchers RRI that s just old wine in new bottles We first need to educate citizens before they can participate!
Participation during all phases of the R&I process How to improve R&I Policies & Programme Project definition Project execution Implementation 1 NEEDS FOR RRI Clear definition Evaluation tools Resources, tools and case studies Spaces for debate Training and Dissemination
Participation during all phases of the R&I process How to improve R&I Policies & Programme Project definition Project execution Implementation 1 1. Community of Practice 2. Toolkit 3. Training & dissemination Toolkit launched on 7th March! www.rri-tools.eu
Resources to implement RRI during all phases of the R&I process How to improve R&I Policies & programme Project definition Project execution Implementation 2 Frameworks / Manifestos / Policy reports Pilot programmes, guidelines and plans for structural change in PAs (Gender equality plans / Research Integrity Guidelines / Open Access, policies adopted by universities on open Access ) Guidelines on how to set up funding programmes Description of Structures Methodologies for research agenda setting Indicators & evaluation tools Methodology for Setting Research Agendas http://www.ncbi.nlm.nih.gov/pubmed/20536537 Broerse, J. et al. ( )
Resources to implement RRI during all phases of the R&I process How to improve R&I Policies & programme Project definition Project execution Implementation 3 Structures for R&I assessment and supervision: Community Advisory Boards, Ethical Committees
Resources to implement RRI during all phases of the R&I process How to improve R&I Policies & programme Project definition Project execution Implementation 3 Community Based Participatory Research & Open Innovation
Social return of our knowledge: informed social debate Resources to implement RRI during all phases of the R&I process How to improve R&I Policies & programme Project definition Project execution Implementation Evidence-based policy making 3 What innovation we want? Publie policies Interventions: How?
Resources to implement RRI during all phases of the R&I process How to improve R&I Policies & programme Project definition Project execution Implementation + Training resources: programmes, recommendations and resources + Perform
INDEX 1. Why? 2. How? 3. When? Participation during all phases of the process 4. Other Inspiring Practices 5. Conclusions
Community Advisory Board HIV/AIDS (Founded by Dr. Coll) 1. Compostition: NGOs, Public Health, Government 2. Training 3. Methods and instruments for deliberation 4. Collaborative Research 5. Assessment in Project definition & execution 6. Recruitment of participants in research projects 7. Information documents for participants 8. Assessment on institutional communication 9. Assessment on policy decisions 10. Dissemination
Monitoring public opinion on nanotechnologies in Europe Online debate Deliberative events Education What do European want from NTs? What is right impact innovation?
www.xplorehealth.eu Educational programme that aims to promote health by facilitating decision making based on evidence obtained from quality research Current research + IBSE + ELSA + Collaborations + Participatory Research
A catalogue of Good Practice Standards in RRI 51 completed surveys from 18 European countries. 31 selected. Analysis and extensive description of: geographical impact, Key issue addressed, stakeholders involved, grand challenge and research theme, process requirement of RRI fulfilled. Tackling societal challenges that involve all relevant stakeholders
INDEX 1. Why? 2. How? 3. When? Participation during all phases of the process 4. Inspiring Practices 5. Conclusions
Nothing about Us, Without Us 1983: Denver Principles VIH/sida: strong self-empowerment movement
We condemn attempts to label us as "victims," a term which implies defeat, and we are only occasionally "patients," a term which implies passivity, helplessness, and dependence upon the care of others. We are "People With AIDS." RECOMMENDATIONS FOR PEOPLE WITH AIDS 1. Form caucuses to choose their own representatives, to deal with the media, to choose their own agenda and to plan their own strategies. 2. Be involved at every level of decision-making and specifically serve on the boards of directors of provider organizations. 3. Be included in all AIDS forums with equal credibility as other participants, to share their own experiences and knowledge. ( )
FROM DEFICIT TO DEMOCRACY J. Stilgoe, UCL
Share your responsability! Rosina Malagrida Deputy coordinator of RRI Tools Head of Public Engagement on Health Research IrsiCaixa, Hospital Germans Trias, Barcelona rmalagrida@irsicaixa.es www.irsicaixa.es/publicengagement @RosinaMalagrida @RRITools also on FB & Linkedin And also from IrsiCaixa: Pep Coll, researcher and MD at IrsiCaixa pcoll@irsicaixa.es Josep Carreras, educator at Unit of Public Engagement on Health Research Obra Social la Caixa Ignasi López Verdaguer, Dani García, Guillermo Santamaría, Belén Perat & Eva Zuazua