Sharing. THE JOURNEY growing up with HRC

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1 Sharing THE JOURNEY growing up with HRC Annual Report 2015

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3 One of our greatest joys is watching our clients grow from children to adulthood, sharing their journey and seeing them blossom. As we get to know them as individuals and understand their needs, goals and dreams, it is so gratifying when we are able to support them along the way. Parent Bobbie Rendon reflected on the relationship that she and son Brandon have had with HRC. Harbor Regional Center was always there for us, giving us support making things run smoothly making my life easier. That has always been our mission and it will continue to be for all our clients and their families. Here are a few of their stories.

4 Cristina A Star is Born This Way The camera has always loved Cristina. We have been lucky to have had the opportunity to share some of her experiences over the years in HRC booklets and videos when she was starting Kindergarten and was fully included at Jackie Robinson Academy in Long Beach, learning dance at the Long Beach Ballet Arts Center, attending Hughes Middle School, or joining the cheerleading squad at Lakewood High School. At the same time, we got to know Cristina s family very well. Her father, Mariano, started out offering support to fellow parents in support groups, as a mentor parent, and volunteering to speak at parent workshops, in both English and Spanish, on working with the schools. Both Mariano and Cristina joined us in Sacramento to meet with our local legislators on behalf of our clients and families. We were so lucky when Mariano became a member of HRC s Board of Trustees, where he served for many years, including as President. Cristina and Mariano represented HRC in Sacramento.

5 We were thrilled to hear earlier this year that Cristina, at age 25, had responded to a casting call by Bunim-Murray Productions for a series they were planning about the real lives of young adults with Down syndrome. We were hopeful that this show would help new parents and the community as a whole to gain a better understanding of people with Down syndrome, reflected Mariano. The new series Born This Way premiered in December to excellent reviews, and has already inspired teachers, employers, and many others to view people with Down syndrome in a whole new light. Cristina told herself to just do it, be myself, and show my heart. Her light shines through, strong and clear, for everyone to enjoy, just as we have all these years. (above) Cristina with fellow cast members of A&ETV s Born This Way. (right) With fiancé Angel. (below) With parents, Mariano and Beatriz today. Her light shines through, strong and clear, for everyone to enjoy, just as we have all these years.

6 Brandon Never Happier When Brandon was very young, he was diagnosed with developmental delays, and was referred to Harbor Regional Center. At age 2 ½, he was diagnosed with cerebral palsy. His mother, Bobbie, recalls the challenges of raising him as a single parent. She looked back upon her relationship with the service coordinators who have stood by her throughout Brandon s 32 years. He loves going to his day program, and going out into the community every single day. Harbor Regional Center has been amazing making recommendations, being a member of our team during his school years, and hooking us up to resources like therapists, transportation, respite, wheelchairs, and communication aids. His service coordinator, Stacy Schafer, and some very special Brandon with parents Bobbie and Craig today.

7 teachers were able to tune in to Brandon s special gifts, like his talent for computers and technology. They were amazingly effective at bringing those out. He was even able to help his fellow students, and he absolutely loved that. During this time Bobbie joined Harbor Regional Center as a volunteer, speaking to other parents and encouraging them to take advantage of the supports available. She also served as a member of the Board of Trustees, and Chairperson of the Community and Financial Development Committee, and currently serves as Vice President. She acknowledges that sometimes things can get bumpy. It wasn t easy for Brandon to make the transition to living away from home, or trying a new day program for adults. He longed for home and for his old friends from school. Sometimes health issues would flare up. Together, we worked through these times. Today, Bobbie considers the licensed home where he lives to be a blessing, thanks to (above) Brandon at his home operated by California Mentor and HOPE. (below) With longtime friend Jeffrey at Easter Seals Southern California, Carson. a great Program Director. The home staff is working with the family and a nurse to maintain optimal health, and help Brandon develop positive relationships with his housemates. Now he brightens the days for the whole household. He loves going to his day program, and going out into the community every single day. He loves swimming, dancing, bowling he does it all. And he has never been happier. As I look at other clients receiving different services for their different needs, they have amazing whole lives. I know he is in good hands, if something happens to me.

8 Caroline Exploring New Worlds Caroline and her parents, Fu-Tien and Lee Jean, first got involved with Harbor Regional Center when she was four years old. A fellow parent at her preschool, who happened to be an HRC psychologist, suggested that Caroline be assessed by Harbor Regional Center. That was when they learned that Caroline had an autism spectrum disorder. Together they recalled, Getting the diagnosis, and working with Harbor Regional Center gave us direction. Then we knew what was going on. Working with service coordinator Charlotte Gill for most of Caroline s childhood and adolescence was a bonus. She provided guidance as they faced challenges and worked with their schools. During this time, her family members became increasingly involved with Harbor Regional Center. Fu-Tien volunteered for many years as a member and officer of the Board of Trustees, and as Chairperson of the Client Services Committee. Lee Jean offered children s art workshops at her studio, and sister Georgina joined the HRC Sibling Club. Throughout these years, Caroline and Georgina were encouraged to be creative and express their artistic talents, and both showed promise very early on. While in elementary school, Caroline entered The Vision for Space Exploration Art Contest sponsored by NASA, the American Institute of Aeronautics, and the Boeing Company. Her entry, depicting a new planet supporting life in an imaginary world, won first place. Caroline s artwork on space exploration won her a trip to meet Astronauts Rich Clifford and Bruce McCandless.

9 Her goals are to get a driver s license, graduate, and find her dream job. (above) With parents, Fu-Tien and Lee Jean today. (left) Caroline is earning a degree in Fine Arts at USC. The family traveled to Houston to see Caroline receive her award and meet Astronauts Rich Clifford and Bruce McCandless. Caroline now attends the University of Southern California, where she majors in Fine Arts. Since her freshman year, she has received supported living assistance from Harbor Regional Center and Life Steps Foundation of Southern California. Besides learning independent skills like cooking and sharing household chores, her Community Support Facilitator has helped her talk about social things, like handling stressful situations. Caroline describes the transition to college life as not too bad, a bit different. Although she recalls she didn t talk to other students much during her first year, her circle of friends began to grow with fellow members of the acclaimed USC Marching Band, with whom she now shares a home off campus. She enjoys pencil drawing and watercolor painting, animation and working on video game design with the Advanced Games Project, a group of students from a variety of majors. Academically, she is on track to graduate one semester early, and says her dream job would be in the animation or video game industry. Caroline loves her independence. Her goals are to get a driver s license, graduate, and find her dream job. That sounds about right.

10 STATEMENT of FINANCIAL POSITION For the Year Ended June 30, 2015 June 30, 2015 June 30, 2014 ASSETS Cash and cash equivalents $ 5,490,281 $ 6,155,011 Certificates of deposit 127,052 67,379 Cash client trust funds 698, ,787 Contracts receivable state of California 7,875,576 4,543,301 Receivable from Intermediate Care Facility vendors 1,361,326 1,464,303 Prepaid expenses 310,299 86,059 Other assets 58,067 93,595 Receivable from state for accrued vacation and other leave benefits 946, ,966 Receivable from state for deferred rent 9,826,231 8,143,327 TOTAL ASSETS $ 26,694,040 $ 22,376,728 LIABILITIES AND NET ASSETS Liabilities: Accounts payable $ 14,658,186 $ 12,329,476 Accrued salaries 361, ,471 Accrued vacation and other leave benefits 946, ,966 Deferred rent liability 9,826,231 8,143,327 Unexpended client trust funds 754, ,979 26,547,498 22,248,219 COMMITMENTS AND CONTINGENCIES NET ASSETS Unrestricted 146, ,509 TOTAL LIABILITIES AND NET ASSETS $ 26,694,040 $ 22,376,728

11 STATEMENT of ACTIVITIES For the Year Ended June 30, 2015 June 30, 2015 June 30, 2014 CHANGE IN UNRESTRICTED NET ASSETS SUPPORT AND REVENUE Contracts state of California $ 156,917,878 $ 146,966,959 Intermediate Care Facility supplemental services income 4,945,666 4,845,386 Interest income 8,571 9,791 Contributions and grants 46,060 75,204 Other income 411, ,493 Total Support and Revenue 162,329, ,281,833 EXPENSES Program Services Direct client services 159,863, ,094,294 Supporting services General and administrative 2,448,166 2,174,166 Total Expenses 162,311, ,268,460 CHANGE IN NET ASSETS 18,033 13,373 NET ASSETS AT BEGINNING OF YEAR 128, ,136 NET ASSETS AT END OF YEARS $ 146,542 $ 128,509

12 STATEMENT of FUNCTIONAL EXPENSES For the Year Ended June 30, 2015 Program Services Supporting Services Direct Client General and Total Services Administrative Expenses Salaries $12,620,536 $ 1,152,831 $ 13,773,367 Employee health and retirement benefits 3,073, ,739 3,354,106 Payroll taxes 183,810 16, ,600 Total Salaries and Related Expenses 15,877,713 1,450,360 17,328,073 Purchase of services: Residential care facilities 49,833,226 49,833,226 Day program 12,997,719 12,997,719 Other purchased services 72,308,818 72,308,818 Communication 301,546 27, ,091 General office expenses 259,484 23, ,187 Printing 23,063 2,107 25,170 Insurance 83,884 47, ,559 General expenses 374,200 34, ,381 Facility rent 5,310, ,053 5,795,133 Equipment and facility maintenance 1,067,195 97,484 1,164,679 Consultant fees 588,941 53, ,738 Equipment purchases 742,575 67, ,406 Board expenses 26,491 26,491 Staff travel 95,308 8, ,014 Legal fees 70,733 70,733 Accounting fees 52,500 52,500 TOTAL EXPENSES $159,863,752 $ 2,448,166 $ 162,311,918

13 STATEMENT of FUNCTIONAL EXPENSES For the Year Ended June 30, 2014 Program Services Supporting Services Direct Client General and Total Services Administrative Expenses Salaries $12,039,154 $ 1,076,822 $ 13,115,976 Employee health and retirement benefits 2,847, ,728 3,102,653 Payroll taxes 213,112 19, ,173 Total Salaries and Related Expenses 15,100,191 1,350,611 16,450,802 Purchase of services: Residential care facilities 46,283,384 46,283,384 Day program 12,873,476 12,873,476 Other purchased services 68,050,774 68,050,774 Communication 304,817 27, ,081 General office expenses 366,660 32, ,455 Printing 35,905 3,211 39,116 Insurance 83,527 40, ,215 General expenses 331,045 29, ,655 Facility rent 4,661, ,977 5,078,894 Equipment and facility maintenance 807,117 72, ,308 Consultant fees 636,806 56, ,764 Equipment purchases 482,376 43, ,521 Board expenses 20,624 20,624 Staff travel 76,299 6,824 83,123 Legal fees 25,678 25,678 Accounting fees 47,590 47,590 TOTAL EXPENSES $150,094,294 $ 2,174,166 $ 152,268,460

14 STATEMENT of CASH FLOWS For the Year Ended June 30, 2015 June 30, 2015 June 30, 2014 CASH FLOWS FROM OPERATING ACTIVITIES Change in net assets $ 18,033 $ 13,373 Adjustments to reconcile change in net assets to net cash used in operating activities: (Increase) decrease in: Cash client trust funds 223,371 ( 4,930) Contracts receivable state of California ( 3,332,275) ( 2,144,162) Receivable from Intermediate Care Facility vendors 102,977 7,675,042 Prepaid expenses ( 224,240) 210,822 Other assets 35,528 ( 25,903) Receivable from state for accrued vacation and other leave benefits ( 44,826) ( 81,859) Receivable from state for deferred rent ( 1,682,904) ( 1,320,066) Increase (decrease) in: Accounts payable 2,328,710 1,087,623 Accrued salaries 23,359 98,389 Accrued vacation and other leave benefits 44,826 81,859 Payable to Department of Developmental Services ( 7,556,774) Deferred rent liability 1,682,904 1,320,066 Unexpended client trust funds 219,480 14,813 Net Cash Used In Operating Activities ( 605,057) ( 631,707) CASH FLOWS FROM INVESTING ACTIVITIES Net change in certificates of deposit ( 59,673) Net Cash Used In Investing Activities ( 59,673) NET CHANGE IN CASH AND CASH EQUIVALENTS ( 664,730) ( 631,707) CASH AND CASH EQUIVALENTS AT BEGINNING OF YEAR 6,155,011 6,786,718 CASH AND CASH EQUIVALENTS AT END OF YEAR $ 5,490,281 $ 6,155,011

15 Caseloads Percentage Intake 2.6% Total Clients 12,356 Early Start 13.6% % Clients with developmental disabilities residing in the community 83.7% Clients with developmental disabilities residing in Developmental Centers 0.2% % 2.6% 0.2% 8000 Clients By Diagnosis Total Intellectual Disability 6225 Autism 3973 Epilepsy 1302 Cerebral Palsy 1085 Other % 36.9% Clients By Age Percentage Birth to Three Years 13.9% Ages 3 to % Ages 18 to % Ages 50 and over 9.2% % 9.2% 5 0

16 Caseloads 50 Clients By Ethnicity Percentage African American 13.2% Asian/Pacific Islander 14.3% Hispanic 41.8% White 26.1% Multi-ethnic and Other 4.6% % 26.1% 13.2% 14.3% 4.6% % 70 Clients By Primary Language Percentage English 77.7% Spanish 17.6% Other 4.7% % % % Clients By Residence Type Percentage Family 84.74% Independent and 6.59% Supported Living Licensed Home 8.67% % 8.67% 0

17 POS Purchase of Services Expenditures Licensed Homes 37.8% 37.7% 37.0% Supported Living 4.8% 4.9% 5.2% Day Activities 10.0% 10.8% 12.6% Therapy Services 29.0% 27.9% 26.3% Respite 4.1% 4.4% 4.6% Transportation 5.6% 5.8% 6.4% Medical Services 3.6% 3.8% 4.0% Other 5.1% 4.7% 3.9% Total 100% 100% 100% % % % % % % % 4.8% 4.1% 5.6% 3.6% 5.1% % 10.8% 4.4% 5.8% 3.8% 4.7% % 12.6% 6.4% 4.6% 4.0% 3.9%

18 Board of Trustees For the Year Mr. John Rea, President Dr. Bobbie Rendon-Christensen, Vice-President Mr. Doug Erber, Secretary Dr. James Flores, Treasurer Ms. Kristine Engels, Service Provider Representative Mr. Ron Bergmann Ms. Erika Braxton-White Mr. Joe Czarske Mr. La Velle Gates Mr. David Gauthier Ms. Patricia Jordan Mr. Marvin Malito Mr. Jaime Martinez Dr. Monica Sifuentes Ms. Wendy Sorel Mr. Robert Irlen, Advisor to the Board Patricia Del Monico, Executive Director

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20 HARBOR DEVELOPMENTAL DISABILITIES FOUNDATION, INC HAWTHORNE BLVD., TORRANCE, CA (310) January 2016