HEALTH 2.0: PUTTING THE POWER OF OPEN SCIENCE TO THE TASK OF IMPROVING THE NATION S HEALTH. Bradford W. Hesse, PhD

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1 HEALTH 2.0: PUTTING THE POWER OF OPEN SCIENCE TO THE TASK OF IMPROVING THE NATION S HEALTH Bradford W. Hesse, PhD

2 Question: What transformative event was destined to change the way we do science in the new millennium?

3 Answer: Douglas Engelbart s Vision for Augmented Human Intellect Early Mouse, circa 1962 * Hesse BW. Of Mice and Mentors: Developing Cyber-Infrastructure to Support Transdisciplinary Scientific Collaboration. American Journal of Preventive Medicine 2008;35(2S):S235-S239.

4 Answer: Augmenting Human Intellect Intuitive Interface Connected Nodes of Knowledge Connected People Computer Aided Design * Hesse BW. Of Mice and Mentors: Developing Cyber-Infrastructure to Support Transdisciplinary Scientific Collaboration. American Journal of Preventive Medicine 2008;35(2S):S235-S239.

5 Answer: Augmenting Human Intellect Intuitive Interface Connected Nodes of Knowledge Connected People Hyperlink Project * Hesse BW. Of Mice and Mentors: Developing Cyber-Infrastructure to Support Transdisciplinary Scientific Collaboration. American Journal of Preventive Medicine 2008;35(2S):S235-S239.

6 Answer: Augmenting Human Intellect Intuitive Interface Connected Nodes of Knowledge Connected People World Wide Web * Hesse BW. Of Mice and Mentors: Developing Cyber-Infrastructure to Support Transdisciplinary Scientific Collaboration. American Journal of Preventive Medicine 2008;35(2S):S235-S239.

7 Answer: Augmenting Human Intellect Intuitive Interface Connected Nodes of Knowledge Connected People Connected People * Hesse BW. Of Mice and Mentors: Developing Cyber-Infrastructure to Support Transdisciplinary Scientific Collaboration. American Journal of Preventive Medicine 2008;35(2S):S235-S239.

8 Connected People Data Collected from Multiple, Remote Sources * Hesse B, W., Sproull L, Kiesler SB, Walsh JP. Returns to science: computer networks in oceanography. Commun. ACM 1993;36(8):

9 Connected People: E.g., Physical Oceanography Data Collected from Multiple, Remote Sources * Hesse B, W., Sproull L, Kiesler SB, Walsh JP. Returns to science: computer networks in oceanography. Commun. ACM 1993;36(8):

10 Connected People: Tracking Changes in Science Differential Benefits for Being Online * Hesse B, W., Sproull L, Kiesler SB, Walsh JP. Returns to science: computer networks in oceanography. Commun. ACM 1993;36(8):

11 Connected People: The Collaboratory Collaboratory From Wikipedia, the free encyclopedia A collaboratory, as defined by William Wulf in 1989, is a center without walls, in which the nationʼs researchers can perform their research without regard to physical location, interacting with colleagues, accessing instrumentation, sharing data and computational resources, [and] accessing information in digital libraries (Wulf, 1989). Reference: Wulf, W. (1989, March). The national collaboratory. In Towards a national collaboratory. Unpublished report of a National Science Foundation invitational workshop, Rockefeller University, New York. Two Connotations Co-Laboratory = Shared laboratory in virtual space Collaborate - ory = Collaborating together in the invisible college Reference: Hesse BW, Grantham CE. The emergence of electronically distributed work communities: Implications for research on telework. Electronic Networks: Research Applications and Policy 1991;1(1):4-17.

12 Connected People: Prime Example in Health Massive example of Team Science as laboratories in private and public sector work in a coordinated fashion to sequence the 3 billion + base pairs of the Human Genome Work continues with online collaboratory tools facilitated by bioinformatics

13 Connected People: Marshaling Collective Science in Cancer

14 Connected People: Open Health* DPE,.LJ IERLTH :, map OF DISIUPTILsE IWWDIIRTIORJ The Institute for the Future s Health Horizons Program has developed a new paradigm for disruptive innovation in the global health economy we call it Open Health. This paradigm leverages the concepts and successes of open innovation and open-source software, and applies them to the world of health. Open Health strategies will redefine the research and development process and will require a radically new way of thinking about innovation systems, the institutional culture of firms, partnerships, and collaborations, and the very meaning of health itself. The implications of Open Health are relevant to all stakeholders in the global health economy, be they beauty, food, consumer electronics, biopharma, health care, or medical technology companies. As it diffuses across industries, Open Health will inspire new approaches to meeting significant global health problems, and it will provide a framework for generating and sustaining new business models of tomorrow. Linux Meets Lipitor Steve Weber, Profesno,, UC Berkeley Collaborative Drug Discovery Institute for OneWorld Health National Cancer Institute s cabig We have identified ten core principles that serve as a foundation for implementing Open Health strategies. This map presents these principles in the context of emerging trends and innovation leaders. It describes the external forces that are driving Open Health and emphasizes the networks and culture, the ethos and skills, the business models and strategies, and the tools and platforms that will shape innovation systems in the global health economy over the next decade. The Open Health Map of Disruptive Innovation (SR-1117A) is your guide to putting Open Health into practice. Use it, along with its companion piece, the Open Health Toolkit: A Framework for Innovation (SR-1117B), to build the capacity to innovate to solve health s pressing problems. HEALTH HORIZONS PROGRAM wwwiftf org 124 University Avenue 2nd Floor Palo Alto CA N5TITUTE FOR THE FUTURE * Source: Institute for the Future SR-il i7a I 2008 Institute for the Future. All rights reserved. All brands and trademarks remain the property of their respective owners. Reproduction Is prohlblted without written permission.

15 Connected People: The National Health Information Infrastructure* * see Hesse BW. Harnessing the power of an intelligent health environment in cancer control. Stud Health Technol Inform. 2005;118:

16 Connected People: Personal, Provider, Population

17 Connected People: Personal, Provider, Population Personal Engagement Personal Use of Data Source: Goetz T. The decision tree : taking control of your health in the new era of personalized medicine. New York, NY: Rodale : Distributed to the trade by Macmillan.

18 Connected People: Personal, Provider, Population Self Determination Theory 1. Autonomy in Decision Making NY Times, Special Section May 27, 2010 Source: Hesse BW. Enhancing Consumer Involvement in Health Care. In: Parker JC, Thornson E, eds. Health Communication in the New Media Landscape. New York, NY: Springer Publishing Company; 2008:

19 Connected People: Personal, Provider, Population Self Determination Theory 2. Mastery Wired Magazine; The Nike Experiment: How the Shoe Giant Unleashed the Power of Personal Metrics Source: Hesse BW. Enhancing Consumer Involvement in Health Care. In: Parker JC, Thornson E, eds. Health Communication in the New Media Landscape. New York, NY: Springer Publishing Company; 2008:

20 Connected People: Personal, Provider, Population Self Determination Theory 3. Connectedness Source: Hesse BW. Enhancing Consumer Involvement in Health Care. In: Parker JC, Thornson E, eds. Health Communication in the New Media Landscape. New York, NY: Springer Publishing Company; 2008:

21 Connected People: Personal, Provider, Population

22 Connected People: Personal, Provider, Population The Medical Team in Oncology Source: Hesse BW, Hanna C, Massett HA, Hesse NK. Outside the box: will information technology be a viable intervention to improve the quality of cancer care? J Natl Cancer Inst Monogr. 2010;2010(40):81-89.

23 Connected People: Personal, Provider, Population Human System Integration Situational Awareness Persistent Conversation Team-based Intelligence Coordination Costs Error Reduction See Also: Hesse BW, Shneiderman B. ehealth research from the user's perspective. Am J Prev Med. May 2007;32(5 Suppl):S

24 Connected People: Personal, Provider, Population Transparency in Quality Consumer-generated Regulatory

25 Connected People: Personal, Provider, Population Accelerating Translation Professional communities Community support

26 Connected People: Personal, Provider, Population

27 Connected People: Personal, Provider, Population Behavioral Data Data Mash Ups Source: Rutten LF, Hesse BW, Moser RP, Kreps GL, eds. Building the Evidence Base in Cancer Communication. Cresskill, NJ: Hampton Press; Kreps GL, ed. Health Communication. Mortality Data

28 Connected People: Personal, Provider, Population Source: Forman MR, Greene SM, Avis NE, et al. Bioinformatics: Tools to accelerate population science and disease control research. Am J Prev Med. Jun 2010;38(6):

29 Connected People: Personal, Provider, Population Journalist s Collaboratory See also: Nelson DE, Hesse BW, Croyle RT. Making data talk : communicating public health data to the public, policy makers, and the press. Oxford ; New York: Oxford University Press; 2009.

30 Connected People: Personal, Provider, Population Journalist s Collaboratory See also: Nelson DE, Hesse BW, Croyle RT. Making data talk : communicating public health data to the public, policy makers, and the press. Oxford ; New York: Oxford University Press; 2009.

31 The Power of Collective Action

32 The Power of Collective Action