How the EUPATI web site can support your efforts

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1 All Aboard to a Better Health Future How the EUPATI web site can support your efforts 14 December 2016 The Square, Brussels, Belgium John Lenehan, Hibernia College

2 What tools are on the web site? Articles Glossary Terms Acronyms Infographics Presentations Fact Sheets Category Pages Videos Case Reports Starter Kits The A to Z of how medicines are developed 7 Languages (Soon to be 11)

3 The tools are divided by: 222 Articles are divided into 12 categories: Basics of Medicine Development Types of Medicines Drug Discovery Safety of Medicines Pharmaceutical Development Clinical Development & Trials Personalised Medicine Benefit and Risk Assessment Regulatory Affairs Heath Technology Assessment Non Clinical Studies Pharmacoepidemiology

4 Glossary 428 glossary terms and 245 acronyms Making it the largest glossary of its kind

5 55 images/diagrams

6 40 Presentations Generic Medicines Paediatric Medicine. The Paediatric Plan Evidence Based Medicine Eudravigilance Making a Medicine. The Basics Compensation in Clinical

7 25 Factsheets Open formats Word and PowerPoint files Simply download and reuse Creative Commons

8 20 Video interviews What type of video do we have? To be filled in

9 Download and reuse Review Reuse Download Attribute CC license Modify

10 Attribute CC license What we produce is free for unlimited use by the public You may: Share tools: copy & redistribute in any medium/format Adapt tools: remix, transform, & build upon the material You must: Give appropriate credit Provide a link to the license Indicate modifications Distribute adapted content under creative commons license You may not: Use the licensed material for commercial purposes commons/ Creative Commons Attribution-NonCommercial- ShareAlike 4.0 International (CC BY-NC-SA 4.0) license

11 New content: 20 Case reports Clinical trials include patients as research partners and not only as trial participants. Ovarian Cancer An ultra orphan disease Collaboration in an oncology trial Melanoma board HIV R&D Collaboration Duchenne Parent Project Between sponsors and participants clinical trial design Informed Consent Feedback HIV DUET Phase III trials Phase III Hepatitis C DevelopAKUre for AKU

12 New content: 9 Starter kits EUPATI Starter Kits A manual for trainers describing how to use the EUPATI Toolbox on Medicines R&D website to create trainings or mini-courses on patient involvement. Texts, infographics, PPT slide decks and videos, all released under the Creative Commons License plus additional links to add-on Toolbox material. 1. Ethics Committees 2. Data Monitoring Committees 3. Investigator Meeting 4. Trial Steering Committee 5. Scientific advice 6. Protocol design 7. Product information 8. Medicines safety 9. Health Technology Assessment

13 Use articles to prepare for your next meeting Use tools to learn about an aspect of medicines R&D which is new to you Use a factsheet & add information specific to your community Use the information & create a quiz or poll for your members Use an image or a diagram for your public information material Use a slide in your next training or presentation

14 Example: Leaflet Creation

15 New languages coming to Tool Box! 1. English 2. French 3. German 4. Italian 5. Polish 6. Russian 7. Spanish Dutch 2016 Danish 2017 Romanian 2017 Portuguese 2017

16 New 2017 design 1. Improves layout 2. Easy navigation 3. Reveal more content 4. Top downloads 5. Recent articles 6. Toolbox focus 7. Entry point a) Beginners b) Experts c) Student

17 Let us know how you are using our content

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